Comments on: Low Dose Naltrexone for Fibromyalgia? Well…

By: Kathy

Kathy — Fri, 02 Jul 2010 20:11:11 +0000

Resist? The good Dr. Cerdarquist looked down her nose at me like I was nuts…even after I tried to show her all the documentation I printed out…including the almighty “published study”. Fibromyalgia isn’t easily treated so you’d think she’d be willing to give LDN a bit of a chance. It was pretty humiliating to deal with her.

Thank goodness there are people like Crystal who are willing to track and share info on doctors that are willing to try LDN. If you’ve checked out the “Patients Like Me” forum you might notice that a lot of people are having success with it. There are 15,000 people with fibro on that site. Finally getting the word out…yay!

By: Betsy

Betsy — Fri, 02 Jul 2010 18:34:28 +0000

Hummmm… I am really surprised that the doctors will prescribe oxycodone, hydrocodone, and methadone but resistive to trying naltrexone!

By: Ginny Dudek

Ginny Dudek — Wed, 02 Jun 2010 21:03:01 +0000

I’ve started a LDN for Fibro group on Facebook to pay it forward. 3 mos on LDN and I got my life back.

By: Kathy

Kathy — Tue, 30 Mar 2010 21:59:49 +0000

I found a doctor through Crystal a yahoo group for LDN that I mentioned earlier . Crystal asks that the doctor’s info not be published on the Internet, so you’ll need to contact her directly at angelindisguise67(at) yahoo.com

Here are some useful links:

Crystal’s MS,TM & LDN Website
http://www.crystalsmstmldn.org

LDN Website
http://www.ldninfo.org

Crystal’s LDN Support Group
http://health.groups.yahoo.com/group/LDN_Users/

By: Jerry

Jerry — Tue, 30 Mar 2010 20:57:34 +0000

Kathy, Since you seem to be in the San Diego area, can you let me know of any doctors you know who might be willing to prescribe LDN for Hep C? I see a number of folks on forums who are being helped by LDN in decreasing their viral load. I live in Carlsbad, but am willing to travel to get this accomplished.

Regards,
Jerry

By: Kathy

Kathy — Wed, 10 Feb 2010 19:23:55 +0000

Thank you! I think your best bet is joining the Low-Dose Naltrexone yahoo group and asking about doctors that will write scripts for LDN. Otherwise you end up with doctors like the lowly-esteemed (by me) Dr. Cederquist at UCSD Hillcrest berating you for even considering it. I try not to hold grudges. It doesn’t always work

Good luck and I wish you the best!

By: Jacque Simmons

Jacque Simmons — Mon, 01 Feb 2010 20:21:09 +0000

AWESOME write up on your experience… Ditto here… Been sick for 35 years and the docs DON’T CARE.. I am gonna ask to try the Naltrexone… I have almost weaned myself off of Norco (was only taking 3-4 a day)..and then gonna see if I can get doc to prescribe me Naltrexone!
Hope to hear your results!!!

By: Kathy

Kathy — Thu, 31 Dec 2009 23:52:44 +0000

Ali, Thanks for the comment! I’m still staring at my bottle of LDN. Unfortunately I haven’t completely come off the narcotics, and that is something I have to do before starting the LDN. At least that’s what I’ve read. The doctor I’m seeing says that as long as I only take the narcotics in the morning (when I’m at my worst) there shouldn’t be a problem. Eh…if I’m going to try the LDN I want to go whole-hog and see if they really do help with the lack of endorphins (aka “lump-itis”)

Now that we’re finished (mostly) moving and the holidays are (mostly) over it will be much easier (hopefully) to get off the blasted narcotics. I’ll just be a lump for a week or two. Fun! But I will keep you updated.

By: Ali

Ali — Wed, 30 Dec 2009 22:59:54 +0000

Hi,

You raised a smile from me with your analogy of no high’s or low’s. Well done, no-ones managed to do that to me for weeks, not that you were trying

Great blog – how have you got on with the LDN?

Ali – a lump.