Comments on: Fibromyalgia and Fatigue Center–XMRV is not just another virus! http://www.fibrochondriac.com/2009/12/16/fibromyalgia-and-fatigue-center/ walking the fine line between advocating for my health and hypochondria Mon, 06 Sep 2010 20:21:05 -0700 http://wordpress.org/?v=2.8.6 hourly 1 By: Mike http://www.fibrochondriac.com/2009/12/16/fibromyalgia-and-fatigue-center/comment-page-1/#comment-628 Mike Fri, 03 Sep 2010 16:42:41 +0000 http://www.fibrochondriac.com/?p=630#comment-628 Agreed about Dr. T's motive on money. I am close with a doctor who knows Dr. T well and she told me she asked him " So why are you charging people $7000 for an appointment with you?" He replied, "I just thought it sounded like a good number" Ugh! Agreed about Dr. T’s motive on money. I am close with a doctor who knows Dr. T well and she told me she asked him ” So why are you charging people $7000 for an appointment with you?” He replied, “I just thought it sounded like a good number” Ugh!

]]> By: Kathy http://www.fibrochondriac.com/2009/12/16/fibromyalgia-and-fatigue-center/comment-page-1/#comment-287 Kathy Sun, 09 May 2010 18:32:50 +0000 http://www.fibrochondriac.com/?p=630#comment-287 I was amazed by Phoenix Rising, so much info! I'll have to look up the Yasko protocol. Sounds interesting, thanks for sharing! I was amazed by Phoenix Rising, so much info! I’ll have to look up the Yasko protocol. Sounds interesting, thanks for sharing!

]]> By: Wendy Ciarci http://www.fibrochondriac.com/2009/12/16/fibromyalgia-and-fatigue-center/comment-page-1/#comment-273 Wendy Ciarci Sun, 02 May 2010 15:28:00 +0000 http://www.fibrochondriac.com/?p=630#comment-273 Good post. I went to the FFC in Norwalk Ct. Same experience. I didn't buy their vitamins though, I just looked up the ingredients and purchased cheaper ones at prohealth.com. I belong to the Phoenix Rising forum and I highly suggest them. Lots of smart and supportive people. Lots of posts on protocols. Many with CFS have a methylation block and supplements to enhance methylation help. It is called the Yasko protocol. I am pretty high funtioning now, but still have flares. I work full time, garden etc. Wendy Good post. I went to the FFC in Norwalk Ct. Same experience. I didn’t buy their vitamins though, I just looked up the ingredients and purchased cheaper ones at prohealth.com. I belong to the Phoenix Rising forum and I highly suggest them. Lots of smart and supportive people. Lots of posts on protocols. Many with CFS have a methylation block and supplements to enhance methylation help. It is called the Yasko protocol. I am pretty high funtioning now, but still have flares. I work full time, garden etc.

Wendy

]]> By: dani http://www.fibrochondriac.com/2009/12/16/fibromyalgia-and-fatigue-center/comment-page-1/#comment-247 dani Tue, 30 Mar 2010 23:48:21 +0000 http://www.fibrochondriac.com/?p=630#comment-247 please do not feel that you can do things all the time just because you managed it once. that is not the case, at least to with everyone. overdoing it can lead to very harsh consequences. you dont' "just need a purpose". you have a perplexing illness that allows you to do things at some times & not at others. please dont' hurt yourself with this "i'm just lazy" kind of thinking. please do not feel that you can do things all the time just because you managed it once. that is not the case, at least to with everyone. overdoing it can lead to very harsh consequences. you dont’ “just need a purpose”. you have a perplexing illness that allows you to do things at some times & not at others. please dont’ hurt yourself with this “i’m just lazy” kind of thinking.

]]> By: Kathy http://www.fibrochondriac.com/2009/12/16/fibromyalgia-and-fatigue-center/comment-page-1/#comment-235 Kathy Wed, 24 Mar 2010 18:03:39 +0000 http://www.fibrochondriac.com/?p=630#comment-235 Cliff, if I had it to do over again, I would not have gone to the Fibro and Fatigue Center. It was a lot of money out of pocket for treatment that didn't help me. But that's me...and that's my opinion. Good luck to you! Cliff, if I had it to do over again, I would not have gone to the Fibro and Fatigue Center. It was a lot of money out of pocket for treatment that didn’t help me. But that’s me…and that’s my opinion. Good luck to you!

]]> By: cliff thompson http://www.fibrochondriac.com/2009/12/16/fibromyalgia-and-fatigue-center/comment-page-1/#comment-234 cliff thompson Wed, 24 Mar 2010 17:14:19 +0000 http://www.fibrochondriac.com/?p=630#comment-234 i'm thinking about going to this FFC in Troy Michigan No moneys out of pocket as of yet but would like some input on this subject that's Chronic fatigue syndrome, etc. Fibro thks cliff i’m thinking about going to this FFC in Troy Michigan
No moneys out of pocket as of yet
but would like some input on this subject
that’s Chronic fatigue syndrome, etc. Fibro
thks
cliff

]]> By: Kathy http://www.fibrochondriac.com/2009/12/16/fibromyalgia-and-fatigue-center/comment-page-1/#comment-185 Kathy Thu, 25 Feb 2010 17:28:03 +0000 http://www.fibrochondriac.com/?p=630#comment-185 Kathy, I agree with your doctor...however some people sing FCC's praises. I don't know what to think of that. I tried a "live" support group when I lived in Seattle. It was not a good experience. Lots of whining and gnashing of teeth and picking on each other. Got enough of that going on at home, thanks (kidding!). I've had a lot more success with online support groups such as <a href="http://chronicbabeclub.ning.com/" rel="nofollow">Chronic Babe</a> and <a href="http://www.patientslikeme.com/" rel="nofollow">Patients Like Me</a>. There are quite a few of them out there, but those are the ones I've migrated to and made friends on. Okay, they're online friends...if I have to qualify it, but it's one heck of a lot better than whining, gnashing of teeth and picking on each other. And it beats isolation with a really big stick!! Kathy, I agree with your doctor…however some people sing FCC’s praises. I don’t know what to think of that.

I tried a “live” support group when I lived in Seattle. It was not a good experience. Lots of whining and gnashing of teeth and picking on each other. Got enough of that going on at home, thanks (kidding!). I’ve had a lot more success with online support groups such as Chronic Babe and Patients Like Me. There are quite a few of them out there, but those are the ones I’ve migrated to and made friends on. Okay, they’re online friends…if I have to qualify it, but it’s one heck of a lot better than whining, gnashing of teeth and picking on each other. And it beats isolation with a really big stick!!

]]> By: Kathy C. http://www.fibrochondriac.com/2009/12/16/fibromyalgia-and-fatigue-center/comment-page-1/#comment-178 Kathy C. Fri, 19 Feb 2010 05:35:22 +0000 http://www.fibrochondriac.com/?p=630#comment-178 Thank you so much for posting your story. I have been considering going to the FCC for a couple of years now but my doctor did not encourage it because he felt it was a scam but I am so desperate to feel better that I was willing to give it a shot, now after reading your story, I will keep my money and keep my doctor, who may not have all the answers but has my best interests in mind. I am interested in finding a good support group in Washington but have not been successful, does anyone have any suggestions? The pain has really caused my emotions to go out of control. Thanks again! Thank you so much for posting your story. I have been considering going to the FCC for a couple of years now but my doctor did not encourage it because he felt it was a scam but I am so desperate to feel better that I was willing to give it a shot, now after reading your story, I will keep my money and keep my doctor, who may not have all the answers but has my best interests in mind. I am interested in finding a good support group in Washington but have not been successful, does anyone have any suggestions? The pain has really caused my emotions to go out of control. Thanks again!

]]> By: Kathy http://www.fibrochondriac.com/2009/12/16/fibromyalgia-and-fatigue-center/comment-page-1/#comment-157 Kathy Wed, 10 Feb 2010 19:26:57 +0000 http://www.fibrochondriac.com/?p=630#comment-157 Feel free to use my story about the Fibro and Fatigue Center, Matt. The whole "XMRV is just a virus" has got my panties is such a twist! So yes, I think FFC needs to be outed for their high-priced and relatively ineffective treatments. Feel free to use my story about the Fibro and Fatigue Center, Matt. The whole “XMRV is just a virus” has got my panties is such a twist! So yes, I think FFC needs to be outed for their high-priced and relatively ineffective treatments.

]]> By: Matt http://www.fibrochondriac.com/2009/12/16/fibromyalgia-and-fatigue-center/comment-page-1/#comment-154 Matt Thu, 04 Feb 2010 13:13:30 +0000 http://www.fibrochondriac.com/?p=630#comment-154 I have known a few people ripped off by these clinics. I am looking for others who were who are interested in joining complaints to the medical boards where they were treated/ripped off. I have known a few people ripped off by these clinics.

I am looking for others who were who are interested in joining complaints to the medical boards where they were treated/ripped off.

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