A Carnival of Our Own…

So the gang all got together and came up with a plan…let’s put on a show! Kidding.

Actually “the gang”  started with a forum for women with chronic “Invisible Illnesses” called Chronic Babe. (Chronic Babe is the brain child of Jenni Prokopy.) The one thing we all have in common is invisible illnesses like Diabetes, Crohn’s Disease and other digestive illnesses, Chronic Fatigue Syndrome, Fibromyalgia, Migraines, Sjogren’s Syndrome, Multiple Sclerosis, Depression, Insomnia, Anxiety…you get the idea? We’re the people that get that awful comment “But you don’t look sick!”

Chronic Babe is one of the few places those of us with chronic invisible illnesses can can talk about our lives as they are and be understood. That’s a precious gift. And who knew there’d be quite a few of us blogger types who wanted share our stories? So we, using the theme of “what do you want people to know?” created posts that we’re sharing here.

So instead of putting on a show (was that a really lame introduction or what?), we created our own carnival to introduce ourselves, to each other and to the rest of the world.

These are in no particular order…but each is a fascinating read.

Katie at Overflowing Brain explainsThe Invisible Rules of invisible illness

Ashley at Lymenaide provides an in-depth picture of Lyme Disease in What Everyone Should Know About Lyme Disease. Lyme is Often referred to as the great imitator, Lyme disease is rarely properly diagnosed at the onset of infection. The illness is commonly misdiagnosed as; Multiple Sclerosis (MS), Amyotrophic Lateral Sclerosis (ALS) which is often referred to as “Lou Gehrig’s Disease, Chronic Fatigue Syndrome (CFS), Autism, Attention Deficit Hyperactivity Disorder (ADHD), Lupus, Parkinson’s Disease and many other chronic illness and syndromes.

Diana Lee at Somebody Heal Me When Diana Lee started having chronic migraines in 2003, she thought she’d find the right treatment and get back to her life as planned. She thought she’d be engrossed in a successful career that she’d worked hard for and starting a family at this time in her life. But she’s not and doesn’t know if she’ll ever be able to have these things because of  health problems. She is “Grieving My Old Dreams”

Annie at It’s Time To Get Over How Fragile You Are talks about freedom fantasies in See You Later Illness, I’m Off to Dream Land

KD at Making Noises about what allows her to be more than a person with a chronic illness in “Behind the Lens”

Elisabeth at Redefining “Good” introduces her illness as “one thing after another” in her “Introduction”

My Foggy Brain has an epiphany; “You are responsible for your health and your happiness!

Forgetful Girl writes A Reflective Post at Diary of a Forgetful Girl: “21st birthdays are a special time, and I had hopes for my 21st year. Unfortunately, I became ill! Here’s a little reflective piece on that 21st year, and what my hopes have now become.”

Jolene at Graceful Agony shares in “Searching….” about all of the illnesses I deal with on a daily basis, and searching to find ME in all of it, changing my aspirations, and focusing on the things that truly matter to me…

Maureen at Mo is Blogging…I Think provided an answer to the persistent question “Are You Still Sick?”

Assiya at For A Fairer Today shares just how much “Time” our illnesses take away from being productive.

Brittney who writes about The Road I’m On posted “Niches” noting where we fit in isn’t always where we expect to be.

Dannette reflects in FibroHaven and found that she is no longer at the mercy of fibromyalgia “I have Changed. I am Different. I have Improved.” YES!!

(Just one of those sweet little factoids…I’ve actually met Dannette! In person. Face-to-face. I reached out to her for help shortly after I resigned from my job and she talked me off the ledge. She is an amazing woman.)

This has been an amazing introduction. Thank you! I apologize for it being late and scattered…but that’s what happens when fibro-fog takes over. Only you would understand…


  • Fibroladen

    March 7th, 2010

    Reply

    I have enjoyed looking at your blogs. I haven’t had a chance to read them all, but have added it to my favorites so that I can continue to look at them. If I had the energy, I know I could blog, but not right now. Being invisibly ill is so hard.

    I’m glad that you guys are sending the message out so that people who can’t possibly understand will at least see that there are many of us out there who need support.

    Thank you.

    Kim

  • KD

    March 7th, 2010

    Reply

    Thanks for hosting this blog carnival.

  • Brittney

    March 7th, 2010

    Reply

    Thanks for hosting the carnival, you did a fabulous job!

  • Diana Lee

    March 8th, 2010

    Reply

    Thank you so much for your hard work. This is fantastic!

  • Annie

    March 8th, 2010

    Reply

    Completely awesome! Love it!

  • Forgetful Girl

    March 8th, 2010

    Reply

    Thanks for hosting! I’ve enjoyed reading a few of the blogs- I saved the page as a favourite for later reading. I’m meant to be writing an essay, but the ‘net calls out to me!

  • fibrohaven

    March 8th, 2010

    Reply

    Great job Kathy! We all know what it is like to commit to something and then have to battle your own body to follow through. I appreciate you putting this together and inviting me to participate. You inspired me to write a very personal and heartfelt blog post. Thank you! I am looking forward to reading all the other participants.

    P.S. You are pretty amazing yourself! And a complete survivor. So glad you found me through my blog!

  • Robyn

    March 8th, 2010

    Reply

    Yay! Thanks for hosting this blog carnival; I loved reading everyone’s articles! I’ll make sure to send in a post for the next one… I’d even be willing to host? Let me know.

  • Kris

    March 9th, 2010

    Reply

    Wow, thanks so much! I’ve now been introduced to so many blogs I didn’t know about – and in reading them have heard version of my own story repeated back to me as if I wrote it myself! very validating to hear others going through the same pain and struggle!
    ~krismom

    • Kathy

      March 9th, 2010

      Reply

      Thank you for the nice words Kris (and everyone else who commented, but Kris nailed it!). This is exactly why I wanted to do this. We all have to deal with people who don’t understand what those of us with “invisible illnesses” have to go through every day–so it’s pretty darn awesome when you can communicate with people who have it and get it!

  • Sherrie Sisk

    March 24th, 2010

    Reply

    Great roundup! Well done – I now have lots of new and new-to-me sites to add to the Tramadol Diaries resources page and my Google Reader feeds!

  • Benia Zouras

    April 7th, 2010

    Reply

    Neat collection! Thanks.

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