Archive for the ‘Making a Point’ Category

Every Relationship Has a Purpose

I believe that every person/being, even place, has been in my life for a reason. It’s a stretch to call these relationships a team, but all these people (even saying people is a bit of a stretch in some cases) have served a purpose for me to come to terms with my chronic illness. Yep, they are all on my team because they touched my life.

Is it necessary to illustrate the cause and effect and the function of each team member? Probably not…but for the same reason I blog, I can share bits and pieces.

Here’s a few members of my team…

  • That person who was my bff at work. I was “head cheerleader” at her wedding because her mom wasn’t interested. This is the same person who tried to get me fired from my job. It’s understandable. I was no longer me. I guess that made me the enemy?
  • My (former) coworker, who also had fibromyalgia, was always trying to share information with me about fibromyalgia. I avoided her like the plague. “I DON’T HAVE THAT CRAZY DISEASE!”
  • The other work friend, the one who nicknamed me “Fibrochondriac” because I was obsessing over my health. Funny, he always obsessed over what people thought of him. I never gave him a nickname. Should have.
  • Work, the place I wanted to please, but couldn’t
  • Bed, the place I always tried to get out of, but couldn’t
  • The heart-and-soul friend I lost for 20 years and then found again. Not because she does not have fibromyalgia. But she gets it.
“Be who you are and say what you feel, because those who mind don’t matter and those who matter don’t mind.” – Dr. Seuss

“Be who you are and say what you feel, because those who mind don’t matter and those who matter don’t mind.” – Dr. Seuss (she matters)

  • The nurse practioner who tried drug after drug to try to help me get better. Define better.
  • The new (and I mean brand new—pretty sure the ink was still dry on her diploma) doctor. The one I went to for a second opinion who told me “you take too many pills”. Thanks, I knew that; why do you think I’m here?
  • The psychologists and therapists and other mental health care workers. Especially the one who wrote that beautiful letter describing what a nutcase I was. It helped.
  • The pill-mill doctor who got it
  • The naturopath who didn’t
  • All those other doctors who pre-diagnosed me before I even opened my mouth. I tried to talk the insurance company into not paying you. But you’d already wasted my time and your diagnosis fit neatly in the chart.
  • All the alternative health care providers that I just knew, just hoped, just prayed that this time it would work…
  • So many bloggers who taught me that I’m not the only one. You are my hero. Every last one of you.
  • Jennifer Jaff. A True American Hero. I’d say international but nobody else has such a stupid health care system.
  • Jenni and Danette who let me help and let me flake
  • The wonderful friends I made online. In forums, in chatrooms, Facebook! Social Networking for chronics. We never would have met in person. We couldn’t have made it out of our small little safe corners of the world to do that. But we make each other feel more normal than “normies”.
  • All those flesh-and-bodied friends that bailed. The kids, too. But that’s to be expected. I wasn’t me any more and I wasn’t able to keep up with you any more…doesn’t mean you love me any less.
  • The Fibro and Fatigue Center. And all the other snake oil sellers. I tried it all. Had to find that magic bullet. Still looking.
  • The psychic who told me that I’ll know when I’m healed. She said it’s when I wouldn’t give up any of what I have experienced in this life. It’ll be a while.
  • The husband. Boy did you get sold a bill of goods. And you’re still here?
I got lucky.

I got lucky.

  • And The Dog. Best.Damned.Dog.Ever.
Much loved dog

Much loved dog

Why is everybody always picking on me?

Last week the weather went crazy in San Diego. The rest of the world is basking in the sun and San Diego is feeling more like early February than July. So while that may seem minor to the rest of the world…it made my world a much smaller place!

I was getting used to being quite a bit more active than I’d been during the winter and then BAM!  I got knocked on my butt. Don’t ask me why weather messes with my system so much…it just does. And it doesn’t have to be much of a change. What I’m noticing is if there is much of a barometric change or the weather consistently stays below 65 degrees, I get all achy-breaky. And exhausted.

It’s kinda weird how quickly I forget (me of the short-term memory issues, maybe not so weird) about the pain and exhaustion and just go on my merry way. And I forget how it feels like the whole world is looking down on me because I can’t keep up.

I cause a few disagreements with my husband over my feeling that he thinks I don’t pull my weight. I feel like he feels like I’m a slacker, even when he doesn’t say that.

I know he’s in a no-win situation when I start in on that subject, so generally I just keep my mouth shut after the first round. I guess if he’s actually feeling that way but doesn’t want to discuss it, fine by me. He still gets my award for Best Husband Ever.

I get extremely defensive when I get into situations where I have to admit I can’t do something. I feel like everyone around me is thinking “SLACKER!” or worse. Doesn’t matter if they do or don’t feel that way, it still makes me uncomfortable and defensive. Does that make any sense? And really, does it even matter?

“Be who you are and say what you feel, because those who mind don’t matter and those who matter don’t mind.” – Dr. Seuss :)

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