“Be who you are and say what you feel, because those who mind don’t matter and those who matter don’t mind.” ~ Dr. Seuss
What’s a Fibrochondriac? Is that even a word?
No, but in my world it should be. It is a combination of the word Fibromyalgia, a little understood syndrome that causes pain and a multitude of symptoms and Hypochondriac a person who is preoccupied with their health and worried about getting a serious disease.
For further discussion: So what’s with the name Fibrochondriac?
Is Fibromyalgia a real disease?
I have seen posts that interpret certain studies to say that Fibromyalgia is a disease; but for now, as far as I know it’s a bunch of symptoms that are collectively called a syndrome.
Fibromyalgia is considered as a combination of physical, psychological and social disabilities.The symptoms usually are muscle and joint pain, sleep disturbances, fatigue, depression and anxiety. But if you’re here, you probably already knew that much.
And you might probably know that not everybody who has Fibromyalgia has all of these and most people have these symptoms plus a whole lot more. In my case, I have short-term memory loss. So I have to write things down…good reason to have a blog, right?
Who are you?
My name is Kathy. Fibrochondriac is my “pet name” for how I deal with fibromyalgia. I’m a woman in my mid-forties who developed fibromyalgia several years ago.
I used to be an accountant, but since I now have short-term memory loss that isn’t the job for me! I am used to doing research and writing technical reports (boring, dry work…and nobody ever read them) and like to think I still have an analytical mind.
I’ve lived on the west coast all my life and recently moved from Seattle back down to southern California. I do much better (less overall pain) in the warmer weather and my husband was able to transfer down here.
I’ve got a very supportive husband and dog…as well as three children who have all moved out of the house. I have a grandchild on the way!
Why are you blogging?
To remember things (insert smiley face here!). No seriously. I started this blog because I was ticked off at someone and decided to become active in changing the way people see and deal with chronic illness. Should be an interesting adventure.
And quite honestly, If I take the time to write down what is going on and be quite public about it, I will be more careful to take the steps that I need to stabilize my symptoms and feel better. Since I’m no longer working (as in earning a paycheck) this seemed like a way to be productive and keep my mind engaged. We’ll see.
Why should I read your blog?
Well, when it comes to fibromyalgia, I’ve been there and tried that. I’ve done a heck of a lot of research on fibromyalgia (my husband winces everytime I go near a bookstore!) And I’m willing to tell you about what I’ve tried, trying or won’t touch with a ten-foot pole. I’m willing to share and review resources. Would I call myself an expert? I’m an expert about me and my fibromyalgia.
I try to approach the whole subject with humor (when I’m not ticked off at something) even then I get a little sarcastic. So maybe you’ll laugh. Or maybe you’ll find something out about fibromyalgia. If you don’t have it, but know someone who does, maybe I’ll be able to help you understand it a little more.
If you have fibromyalgia maybe you might learn something from what I write about. There’s a whole lot of information (and misinformation) out there and I’ve dug through a lot of it. I’m planning on writing reviews of books and products that I’ve already tried and sharing information that I find that could be useful.
Seems like a decent reason to take a look at The Fibrochondriac.
Copyright Notice
“Fibrochondriac” and http://www.fibrochondriac.com/, 2010+.
Unauthorized use and/or duplication of this material without express and written permission from this blog’s author is strictly prohibited.
Excerpts and links may be used, provided that full and clear credit is given to Fibrochondriac and http://www.fibrochondriac.com/ with appropriate and specific direction to the original content.
I assert that the writings published on this site are my own original work unless otherwise stated. -Fibrochondriac
Comment Policy
First and most important to me: differing opinions are welcome and valued. I enjoy a good discussion! I certainly don’t have all the answers. Some days I don’t have ANY answer! But I love exchanging ideas and learning new things. If you have something you want to share or ask I’d be very happy to hear from you.
And the way I see it, a blog is kinda like a person’s home…or place of business. Generally people don’t get snarky in these settings.
Some people treat blogs like they treat other drivers on the freeway; they’re rude because they can remain anonymous.
This is my “home” and not a freeway. People exhibiting road rage behavior will be booted. Simple enough? “Negative Normies” need to go start their own blogs. Mine is not available for you.
Oops, one more thing. I may post a comment but I that doesn’t mean I have an opinon one way or another with what is on the commentator’s website/profile. Got it?
How to get in touch with me
The best and easiest way to talk to me is right here, commenting on my blog! Of course I’d say that.
But if you’d like to chat (please no nasty stuff or spam, k?) my email address is fibrochondriac at yahoo dot com.
I love this quote…”I can’t change the world, but I can change the world in me. I rejoice!”-Rejoice by U2

Jan Conatore
August 4th, 2009
Oh, Kathy, I think your site is great….your voice comes through with your wonderful sense of humor and I love the name…Fibrochondriac… I feel like the site should be very heartening and helpful to others who are coping with this misunderstood disease. Go, girl, Go!
Kathy
June 14th, 2010
Thank you MommaJan. It feels really good to have something of my own that I’m working on and learning (lots) about. It certainly is keeping me busy and out of trouble, and that’s always a good thing. I am grateful for your support.
Kathy
Kelly
March 11th, 2010
Kathy, there have been many times where I have felt I am walking the “Fibrochondriac” fine line. I think I had a run in to one doctor that specifically told me that Fibromyalgia didn’t exist and that I needed to start taking Prozac. Of course I broke down in tears, thinking that maybe I really was crazy. Somehow I managed to pick myself back up and keep on searching for a treatment. I have had more relief in two-weeks going gluten-free than I have had with any drug a doctor has given me. I really do love your website and I hope that we can keep in touch.
Kathy
June 14th, 2010
Kelly, Yes going gluten-free has helped me a lot too. It sure helps to have people to talk to, that understand what we’re going through. And most doctors…ugh. Not a fan. Looking forward to hearing from you again!
joy milne
March 14th, 2010
hi has ldn worked for you ? thanks joy from scotland
Kathy
March 14th, 2010
I posted this on the other spot where you posted the question…but just in case…I backed off on LDN because I was having withdrawal symptoms from the narcotics. And I was having such a rough time this winter, my pain was just crazy bad. Once it warms up (my fibro is apparently extremely weather sensitive) I’m going to get off the narcotics and go back on the LDN. That’s the plan! I will be more diligent on keeping the blog updated. It’s been a rough winter.
Laura E
July 10th, 2010
I am unemployed, no health insurance, and have chronic back and joint pain, shortness of breath, the “pricklies(as I call the bee stinging feeling), insomnia and chronic (migraine)headaches, anxiety and panic disorder. These have all been diagnosed separately when I had insurance. Add them all together and you get Fibromyalgia? Where can I go for free treatment? I am in SoCal.
Kathy
July 10th, 2010
That’s a rough spot you’re in. I’ll do some looking around but don’t know of any free clinics. I don’t know if your symptoms add up to fibromyalgia, but honestly I think you’d get the same treatment with or without the additional label of fibro. Not a doctor and I shouldn’t be making it sound like I know what I’m doing
hang in there and try to make some friends in the chronic world…it helps to have friends who can empathize!
Marie Hill
August 25th, 2010
Just have to comment that I love your blog. I’ve never been a writer, so I appreciate your abilities. I relate so much to what you have written. I too suffer from fibro and have tried a lot of stuff. Hopefully we can share our experiences and help each other. BTW – love the Dr. Seuss quote – isn’t that the truth!
Kindest regards,
Marie
Kathy
August 25th, 2010
Thank you so much!